Patient & Public Involvement in Research
The Research & Development Office strive to increase the opportunities for patients and their families to be informed about, and involved in, our research and research processes.
Patient and Public involvement in research referrers to an active partnership between researchers and patients and/or the public in the research process. At York we strive to actively involve patients in as many of our research projects and ideas as possible.
INVOLVE describe three levels of PPI. These are often interlinked and complement one another.
- Involvement - where members of the public are actively involved in research projects and in research organisations
- Participation - where people take part in a research study
- Engagement - where information and knowledge about research is provided and disseminated
Different levels of involvement will be appropriate for different research questions and situations. However, York Teaching Hospital NHS Foundation Trust believes that members of the public should be involved in all aspects of the research cycle. For a full description of each step of the research cycle go to the INVOLVE website.
We have already made progress in this area by having significant lay representation on our R&D Group and organising and hosting patient focus groups to help develop our research ideas. Also, we have recently trained a small group of interested members and governors into the background of clinical research so they can now read patient facing research materials for us, and edit them to be more understandable for the public.
Click here to find out how to get involved in our research
There is a new YouTube video featuring patients, Patient Research Ambassadors and research staff has been released by the Clinical Research Network Yorkshire and Humber, on the theme of Giving the Gift of Research. Click here